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Why me? Why HHT? Why Afib? IT'S NOT FAIR!

  Why? Why? Why? It’s not fair – why have we got Atrial Fibrillation and/or HHT? The latter is simple – genetics – it’s a hereditary condition as the name Hereditary haemorrhagic telangiectasia (HHT) suggests.   On the NHS website it describes it as follows “HHT is an inherited genetic disorder that affects the blood vessels . It's also known as Osler-Weber-Rendu syndrome.”   Now what about Afib?   Now this is a bit more complicated.   The major risk factors are as follows:        ·          increasing age ·          high blood pressure ·          obesity ·          heart disease (like heart failure, valve issues, CAD) ·          diabetes ·          excessive alcohol ·   ...
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Weeks 6, 7 and 8...

WEEK SIX AND ONWARDS Week 6 Progressing.   Slowly.   Too slowly.   Far too slowly for me. I’m not a patient patient. Used my E-bike again, but it’s now refusing to charge more than 91% and since the range is not great, that is annoying.   It got below 20% battery on my ride this week which means the 250 Watts of aid (red setting) suddenly felt like 60W (green setting).   I peddled very slowly home and survived but it’s not ideal.   Seems it may need a ‘software update’.   Who knew!! Managed to walk 1.22 miles at a fair pace.   Felt great.   Also did some cooking – prepped Yogurt Marinated Chicken for dinner plus made Falafels for later in the week.   Next two days I was exhausted. Do I never learn? The Chicken was DELICIOUS, by the way, but the yogurt had curdled and it looked disgusting – bit like cat sick – (just saying, mum!).    Eating less both because I am getting fatter and fatter but also because of my IBS.   I...
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RECOVERY FROM ABLATION - CLINICIANS' ESTIMATES VS REAL LIFE!!

    RECOVERY FROM CARDIAC ABLATION - this is long, so get yourself comfortable! I wanted to write at length about this topic as when I had my very first ablation, I thought there was really something very wrong with me as it took me so many months to recovery.   There is always a professional cyclist you hear about who had an ablation but was back on their bike within a week!!     All I managed was some slow, short walking (ie ten minutes) and very gentle yoga/stretching after a few weeks, but then found I was very fatigued.   Posting on a so-called support forum I was then told that I was “undoing all your Electrocardiologist’s good work” and was absolutely devastated (It was never explained how someone could “undo” a burn scar – perhaps this guy should go and share his wisdom with one of the burns units…).   A phone call to the marvellous Arrhythmia nurses reassured me that the person that said that was talking out of their ******** (ins...
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