The HHT and Afib Athlete

  27 August 2025 So, the 10 days or so, after that upsetting Occupational Health meeting, have been a bit of a see-saw! On the plus side the doctor signed me off until September as instructed by OH and I continued to make improvement physically.   However, my mental side is very varied – some days I’m fine other days I just feel like crying.   I wonder if it is some sort of delayed reaction to everything, I have been through in the last six years: ·          16 bouts of Rapid Afib, all requiring hospitalisation – 11 of them finishing with a DCCV (electrical cardioversion to restore heart rhythm). One episode led to extremely low blood pressure which could have been fatal. ·          Four ablations to correct the above Afib (none worked) – each taking 4-6 months to get some of normal (i.e. sporty) life back. ·          Four lots of treatment on my...

  28 May 2025 I’m now 25 days post-SCAD and five days post last Atrial Fibrillation episode.   Boy, do I feel rough.   Six days ago, I was able to walk nearly a mile at close to my old speed, ok I was tired later and I had some SCAD chest pains but there seemed to be light at the end of the tunnel (It was a train coming!!!).   The Cardiac Nurse at Papworth seemed to think I would recover a lot better than I ever did after an ablation and my ‘performance’ that seemed to prove that.   After all, according to my meticulous research (and having far too much time on my hands) I had evidence that post-Ablations my average time to be able to walk a mile was 29 days (7 – 48 days) and this was only SIX days and I did it without innumerable stops and at a fair clip!  However, since the AF episode I managed to walk a very slow 0.30 miles with a rest day in between.   I’m tired all the time, I feel sick and light-headed much of the day.   This in turn is ...

  25 May 2025 I’m not sure if I mentioned this before, but in late March I had a run of tachycardia while mopping the floor.   Just about five minutes, but I contacted the Papworth Arrhythmia nurses to see if I should still try to wean off of the Amiodarone drug (reminder – I had 18 months of only one arrhythmia issues while on Amiodarone from Feb 2023, but was persuaded against my will to have a fourth ablation in order to get off of it as it can be very toxic long term).  The nurses said to still come off of it so we could gauge if the Ablation #4 had worked.   You may recall I had about 10% confidence it would, but had allowed myself to be swayed by medical advice.   And so, on the 3 rd April I took my last Amiodarone.   Within five days I was having short runs of tachycardia – 1-2 minutes, these were happening zero to three times per day.   This continued and I began to believe perhaps it would stay like this as something that was a small pr...